Thursday, May 26, 2016

We are human: Issues in life often extend far beyond autism

We all face many obstacles on a daily basis. Many of these challenges far exceed dealing with autism on a daily basis. You see, we are not only autism parents, but we are also regular human beings that face additional challenges that extend far beyond just dealing and coping with having a child on the autism spectrum.

My son was diagnosed with autism almost two years ago. By the time that he was diagnosed, I was already fully engrossed in his demanding schedule. For those of you that have been following my blog, you already are aware that his schedule was extremely demanding. His schedule was basically like having a full time job. There is absolutely no way that I would have been able to keep up with his schedule without the help of my amazing family.

The point of today’s post is really to focus on how to cope with life’s challenges when life seems to throw out more than the average person should have to deal with. I have had an extremely challenging year that extends far beyond the scope of autism. I was diagnosed with a connective tissue disease this year that has created many of its own challenges. I have been hospitalized a couple of times this year, I have had two cellulitis infections, two kidney infections, and a host of other issues due to the autoimmune disease. Autoimmune disease is fueled by stress. You see, for the longest time I thought that I was super woman. I thought that I could work full time, manage my autistic son’s crazy schedule, run a special education department, and work on my post master’s principal certification. I was wrong. This year has taught me that I am only one person, and that it’s okay to find balance in life. This year has changed my perspective on quite a few things.

I have decided to take a one year leave of absence from my job next year. I am going to focus on getting my health back together and really focusing on my family. I have three boys that really need me, and I have realized that I will not be useful to anyone if I can’t help myself.

Your struggles may look differently than mine, but I am sure that you also face difficulties in life that extend beyond the scope of autism. I really want to encourage everyone to really take the time to find perspective. Autism can be hard, life can be hard, but we have all been given this amazing opportunity to live and breathe on this earth, and we should all try and make the most of it on a regular basis. I know that this is going to be my focus for the upcoming year.


  1. Good to know that I am not alone when it comes to having a difficult year. My 8 year old son is on the Spectrum and he is also ADHD. He is a very bright and special boy. I have chosen not to put him on medicine because he is just a child so his behavior at times is stressful.I also have a 4 year old son who will be seeing a Psychiatrist next month because I am positive that he is also on the spectrum. He is full of spunk but he has a horrible temper.I am scared to death to get his Booster shots because I have a cousin whose son received his shots and he regressed after and he was perfectly fine before. I am scared to lose the son I know. I am also dealing with the fact that I may be autistic myself. My mother also died last year and she was very close with my boys. My stepfather started seeing another woman 6 weeks after she died and only let me have pictures and wouldn't let me visit my mother's ashes on my first mothers day without her. So I am an orphan because I lost my mom and my stepfather. I also had CPS falsely called on me last may because my 4 year old fell and hit his ear on a weight training bench and his ear ballooned to triple it's size. I have Polysystic Ovarian Syndrome and I am battling anxiety and depression. My husband may also lose his job at the shipyard he works at and I don't know what we will do if that happens. I am a respite care provider for military families who have children with disabilities.I like my job but it can be difficult at times. There are many days that the stress feels unbearable and it is all I can do to just get through the day. I am thankful for the positive things because the truth is that it can always be worse. My children speak and I have a husband who is great to me and our boys but the most important thing I am grateful for is that I am still here for my children because they need me and that is how I cope with life. Just another mom going through trials and tribulations.

    1. DiaryofanautismmomMay 26, 2016 at 9:31 PM

      I understand what it's like to face trials and tribulations. I am sorry that you are going through so much at this point in your life. I also tell myself that it could always be worse and to be thankful for everything that I do have in my life. Thank you for opening up and sharing. I hope that things begin to get easier for you ❤️