Sunday, April 24, 2016

The life of an autism parent or autism grandparent


The Life of an Autism Parent or Autism Grandparent
From the time that my son was three years old up until age six, my days were filled with what seemed like countless therapy sessions. There were times that I felt that being an autism mom was almost like having a full-time job. I must say, that there is absolutely no way that I would have been to keep up with my son’s schedule without the help of my family. As many of you know, I am a special education teacher in addition to being an autism mom. Both jobs are extremely busy, and there is absolutely no way that I could do both jobs successfully without the help of my amazing family. Listed below you will see just how busy my son’s schedule was from age three until age six.


Mon
Tuesday
Wed
Thurs
Fri
Sat
AM
Regular Preschool
Private
Speech/OT
Regular Preschool
Private
Speech/OT
Regular Preschool
Piano
PM
Developmental
Preschool
Developmental
Preschool

Developmental
Preschool
Developmental
Preschool

Evening
ABA

ABA

ABA


As you can see, therapy was a huge part of my son’s life for almost three years. My son has made huge leaps and bounds so we have decided to decrease his therapy sessions this year. Currently, my son is in a full-time general education kindergarten. He receives speech and occupational therapy within the school district. We still take him to private speech and occupational therapy, but we have decreased from two times weekly to one time weekly. In addition, my son’s ABA provider found a new job in December of this year. We are still waiting for someone to get hired, so ABA therapy is on hiatus. This year, we have decided to place more of an emphasis on extra-curricular activities such as piano and soccer. My son is at a point where he needs to apply all of the skills that he has learned into a variety of social situations. I must say that he has done amazingly well this year. This isn’t to say that there haven’t been difficult times, but overall my son has done a great job of transferring the skills that he has been taught.
I was a special education teacher before my son received his autism diagnosis. I heard countless stories from parents in regards to how time intensive their therapy sessions were. I must say that I now have a new found appreciation for every parent or grandparent that spends their time making sure that their children or grandchildren are making it to their therapy sessions. No one truly understands this life until they have had the opportunity to live it. With that being said, I feel blessed that I have had the support and resources to make sure that my son received these much needed interventions.


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